Monthly Archives: May 2015

$27,000. 17 Races. 98 Generous Friends!

I’ve been learning about fundraising by experience, and I now know you should lead with the donation link. So here it is! Head on over and help support my fundraiser: http://igg.me/at/fiftytwofives

A Few Thoughts on the Backstory

Crossing the line in the Bay Breeze 5k

Crossing the line in the Bay Breeze 5k

It’s almost six years since my encounter with Guillain–Barré syndrome began. I remember it well, I doubt anyone who’s had GBS would forget it. I’m happy to have it in the rear vision mirror, and to see it fading into history. I reassure myself that I’ve now got as much chance of getting GBS as anyone who’s never had it.

It took over five years to want to talk about it publicly. In hindsight, I’m not sure why. It’s been cathartic to share the story, and turn a bad experience into a fundraising experience that helps others. Perhaps it was just that talking about it brought it into the forefront of my mind, and it’s an experience I’d have rather forgotten for a while. Anyway, I feel great about doing something good with a bad experience.

Fundraising So Far

Since I began my fundraiser for the GBS/CIDP Foundation, we’ve raised over $27,000. That’s a solid effort for 4 months, but it’s still $25,000 from my goal of $52,000 in 2015. I’ve also managed to run 17 races to raise awareness of GBS and related conditions, about 33% of the way to my goal of 52 races in 2015. Running feels like a fine way to defy GBS, and I’ve heard from more than a few recovered and recovering GBS patients that they like the idea of running as a defiant act.

I maintain a separate blog about my fundraising and racing, and it’s over here at http://fiftytwofives.com. You can read the stories of my races, including my first ever unlikely victory in a race and my crazy time running in Buenos Aires. If you follow the blog, you’ll also get a near-weekly update on my fundraising escapes. If that isn’t enough, Like my page on Facebook, and you’ll get a nearly daily update in your feed.

There’s been some pretty amazing donations. I won’t pick a favorite, but I love the story of Norman Herms of Philadelphia. He mailed a check into the GBS-CIDP Foundation International with the following message: “Please give this check to Hugh Williams. I do not have a computer. I had GBS in 1988 at 55 years old. After 65 hospital days and ten days of therapy I recovered 100%”. That’s a pretty cool story.

Back when

Back when our fundraising began! January 1 in Phoenix, Arizona on a cold morning

All up, 98 people and organizations have contributed to the fundraiser. That includes 3 companies, Pivotal, Accel Partners, and Medallia. I owe them a special thanks for being corporate donors, and I hope other companies will join in too. If you’d like to be part of the story — maybe even our 100th contributor — then you can head over here and donate. There’s some cool perks too, just choose one when you contribute.

See you again soon.