I’m trying hard to get out the word out about my fundraiser for the GBS/CIDP Foundation. As I shared last week, I suffered from GBS in 2009 — and it was a tough personal experience — and now I’m running to raise awareness of GBS and funds so that the Foundation can help others. (Hopefully, I’m not driving you crazy — this is the first time I’ve attempted a personal fundraiser, and I’m feeling my way — shoot me an email if you have advice to share.)
I learnt this week that three people in my network have been touched by GBS. I’m sure there’s more out there. While it’s estimated in only affects 1 or 2 people in every 100,000, it’s not that hard to find someone who’s personally experienced what it can do. But you have to be looking to find people: the scary thing about GBS is that most people haven’t heard of it (and most medical professionals don’t know the signs), and so it’s incredibly important to raise awareness and to have support from an organization that knows what to do.
Even the name of it is impossible. I had the condition for a few weeks before I could pronounce it properly. For what it’s worth, it’s GHEE-N BAR-A syndrome.
I’m sharing the stories of my 52 races through my Facebook page http://facebook.com/fiftytwofives, and on my fundraising blog fiftytwofives. I just published a new piece on my race yesterday — I hope you enjoy it.
I know you’re all busy, and it’s hard to find time to donate, but I’d really appreciate it if you can find the time and want to help out. I’ve got a long way to go to get to $52k. Head over to http://igg.me/at/fiftytwofives, and I promise it’ll only take 2 or 3 minutes to hand over some cash. Choose a “perk” while you’re there — my favorite is the t-shirt when you donate $100, which will include *your name* on the back as one of my major sponsors.
See you next time.